peeing

a pot to pee in

“Hi KatieF, I’ll be with you in a minute. You’re looking good,” she said. Then she turned again and repeated it. “You’re looking really good actually!”

Whoa! I took that to mean that the last time she saw me I didn’t look so good. Of course, the last time she saw me was the day after I donated to Blokey so maybe I can forgive her.

I was expecting Nurse Potty Mouth when I went for my annual (and only three months late!) living donor renal check-up. Nurse ABitMoreSensible doesn’t work Friday’s so it was a bit of a surprise to see her. She took me down to the transplant ward and we had a cosy little chat about this, that and the other.  She ticked a few boxes on her form, took my blood pressure (131/78 – a little off-kilter but she said it was fine) and made me pee in a pot.

“No blood, no protein, no sugar,” she announced.

Huzzah.

And that was it. I’ll return in three years (five years post-donation) and see my GP for the next two annual check-ups. I just had to visit Team Cullen so they could take my blood (only two vials, most disappointing) but the little Vampire woman did it with no fuss; she got the needle in first time.  Love the Vampire folk!

Now I just need to wait for my copy of the letter which goes to my GP and I’ll know just how nearly-perfect I am.

*smile*

Blokey has a check-up next week. I didn’t see The Delectable Dr Neph, Phwoar! but Blokey probably will.  I’m very tempted to take the morning off work and go with him just so that I can sit and drool; there have to be some perks to this donation malarkey …

(Day 816, NO DIALYSIS!!!)

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and the results are in …

I wrote the following back on the 6th January. I didn’t post it, not because I didn’t want to but because I thought I had.

“Yesterday I finally received the results of my Hospital check-up (only two months and a couple of days after the Event itself.)  I am pleased to report that having Googled all the results I *think* I’m pretty much the perfect specimen of Human Being-ness, with my remaining kidney behaving as it should.

*takes a[-nother] bow*

(Day 346, NO DIALYSIS!!!)”

I *think* that I toddled off to check that my results were good before I posted what they were and looked a complete plonker when some wise person pointed out that actually they were a tad skewy.

These were my results:

Blood Pressure 120/76
MSU – normal
Hb 12.1g/dl
WBC 7.0
Plt 209
Na 140mmol/l
K 4.7mmol/l
ACR <0.6mg/mmol
Urea 5.3mmol/l
Creatinine 76umol/l (equates to 0.86 in AmeriSpeak)
eGFR 79mis/min

I was a trifle worried about the eGFR but it transpires that I don’t really need to be.  My creatinine is near perfect (I think) and they tend to go by this more (I think, again … I’m full of thinking today).

I go back for the second anniversary in October and then I’ll just have to pop to my GP and request renal function tests for years three and four.  Year five I’ll be back at Hospital to see the living donor team again.  I have no idea what happens at year 6 …

I also have no idea what most of those results above mean, but hey-ho.  Life goes on.

We’ve been away this weekend, sampling the delights of the Norfolk coastline and the joy (ha) of spending time together. I realised that I still worry about Blokey’s peeing ability.  I went copious amounts of time and he went once (during the day). I expect I’ll always worry about it, which is just another sign that we’ll never be completely free of this; we’ll always be expecting the worst to happen because one day it will happen.  We can’t escape that. But won’t it be lovely if it doesn’t happen for thirty years and by the time it does happen some new-fangled research has made life with no kidney function to be a doddle?

*fingers very crossed*

(Day 474, NO DIALYSIS!!!)

the misbehaving kidney

Wednesday (Day 183, NO DIALYSIS!!!) was our six month Kidneyversay.  It should have been a happy occasion, filled to the brim with hope for the future, but instead Blokey ended up back in Hospital with a creatinine of 1000 (11.3 in AmeriSpeak).  And there he resides still.

He was discharged from Hospital hours after my last entry and everything was going swimmingly.  We had a nice Easter with Lord of the Rings and chocolate.  We went for walks and Blokey got on with his OU assignment whilst I plied him with tea and took care of his needs.  Day 177, NO DIALYSIS!!! saw Blokey become a little ill.  He wasn’t too worried, so I wasn’t too worried.  The following day he was a trifle worse and I suggested he phoned the doctor/Hospital.  No, he was fine.

*rolling of eyes*

It wasn’t until Day 182, NO DIALYSIS!!! that Blokey decided perhaps he did need a doctor.  My nagging and utterings of mean-ness (I didn’t give you my kidney so that you could neglect it!) didn’t do much to cajole him; it was the lack of peeing which suddenly panicked him.  So Wednesday morning saw him toddle off to Hospital, where a scan showed no damage, but his bloods showed crazy levels, particularly of creatinine.  For those not in the know, a creatinine of 1000 is pretty much dangerously death defying.

*grin*

After coming home to grab his toothbrush and pyjamas he went back to the nicely starched, cold and uncomfortable bed they’d found for him.  The Good News is that he’s currently on his lonesome due to (previously, upon admission) having the squits.  He doesn’t have the squits anymore, is on a fluid drip, is peeing again and his creatinine had gone down to the dizzy-heights of 940 yesterday morning.  Huzzah!  Hopefully his bloods this morning will show that it’s gone down MUCH further.  Oh, and he’s eating … he barely ate for six days; I think he managed half a bowl of soup, two digestive biscuits and some scrambled egg.  If nothing else good comes of this fiasco, at least he should have lost some weight.

They performed a biopsy on Our Kidney yesterday.  I don’t think he realises the possible consequences of this, although I can only assume they’ve told him the risks and he’s okay with that.  It meant he had to spend the entire afternoon flat on his back, but despite that he sent me lots of happy-ish texts.  This is odd for Blokey; Hospital usually brings out the worst in him.  Woe, doom, gloom, miserableness, anger … it all comes across in his texts, making me sad.  This time his texts (and words; we actually spoke on the phone last night!) are upbeat and positive.  He’s in a Good Place right now*.  But I digress; the slivers of Our Kidney which they retrieved from the biopsy were fatty (hey, that’s my kidney!) so they weren’t sure how much info they’d glean.  If need be they were going to perform the procedure again today.  I hope that he tells me long before they do so that I can convince him to ask extremely important questions like, how risky is it? and is it completely necessary?

We’re expecting him to be enjoying Hospital food until Monday at the earliest.  I shall pop along to see him tomorrow, and we shall miss our Big Night Out (we were supposed to be seeing the comedian Sarah Millican, the first comedy show we would have been too in yonky-donkeys) but we’re gifting that to friends.  It seems that when we actually plan for something, something else comes along to make the plan fall into chaos.  We shall have to start living spontaneously.

Haha.

(Day 185, NO DIALYSIS!!!)

*I’m a little concerned about him being in a Good Place because our beloved Mog-cat is missing, last seen by me at 10 on Sunday morning. It’s been a stupid week.